CDKL5 Supporting Organizations:

LouLou Foundation

CDKL5 Alliance  

Rare Disease Networks and Genetic Support
Canadian Organization for Rare Disorders (CORD)
Regroupement québécois des maladies orphelines 
Orphanet   

Epilepsy
Epilepsy Canada  
Canadian Epilepsy Alliance 
Epilepsy Ontario 
SUDEP Aware 

Rett Syndrome
Ontario Rett Syndrome Association (ORSA)
International Rett Syndrome Association (IRSF)  

Autism
Autism Canada 
Geneva Centre for Autism